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New Kindred Spirit

Received the following email from one of the folks I'm working closely with these days:

Forgot to tell you – Tiny stress zit appeared on nose.  Have decided to blame on Q…  Should I post
on chez perky?

I love her.  Truly, I do.

I have to say, I'm not sleeping much these days.  I'm working too much.  There's programming for my multiples club.  There's parenting 101.  There's cleaning in the house (that's pretty much not getting done).  I've got a neighbor who just had a hip replaced and I'm doing her laundry for her once a week.  There's a friend whose triplets are in the hospital with the flu and pneumonia.  There's my friend who's triplets are in the ICU because of the fire and the huge relief effort and coordination associated with that.   There's the fact that I don't like loose ends so even when it isn't my "shift" I'm right there working on the things that I had hanging around the day before.  There's my actual job – you know, the one I get paid for?  The software release coming out in a couple weeks.  The new policy that's getting released at the same time that I'm writing.  The meetings.  The training modules to develop.  The data reviews.  There's the meal preparation and the daily grind.  There's the fact that I have a minor dental emergency that I have to take care of tomorrow.  My car needs servicing and heaven knows when THAT'S going to happen.  There's getting J to (and from) school and speech therapy.  There's the class we're taking.  There's my friend who found out her dog is dying.  There's the fact that my husband won't be home tonight.  There's life, you know?  Did I mention I've been sick?

But then?  There's finding the kindred sprits among us amidst all of the other crap going on in life.    It just makes it all okay.

Her words cut through me, more painful than a knife cutting through my flesh.  Her selfishness about her own feelings and her inability to realize how her words would affect me, so apparent. 

"You know," she said, with no prompting from me, "when you guys first told me about the triplets and you were telling me that doctors were encouraging you to reduce the pregnancy… " 

Clearly this was going nowhere good.

"I think about that often.  And I just."  She starts getting a little choked up here.  "I am just so glad that you didn't.  Because I wonder all the time which one of those precious babies wouldn't be here."

I feel my face burning with anger, thankful for the very small favor that this conversation is taking place over the phone, rather than in person.  How dare she?  How frickin' DARE she make this about HER pain?  Is there anyone out there who does not believe that I did not agonize over ever even considering a reduction after seeing three perfectly viable heartbeats?  Does she think it was fun having doctors tell me my two choices were to try to carry all three and probably lose all three and possibly compromise my own health or reduce to possibly increase the chances for everyone, but still risk losing them all? 

I know which baby wouldn't have been here if I'd reduced.  Does she think I don't know that?  Does she think it isn't awful enough in and of itself that I know that?  Does she think that's not awful enough without being reminded of it?  Did she really *have* to bring it up without any good reason?

And really, how dare she fail to consider how her words might affect my state of mind.  How dare she only consider her own pain, pain which frankly she has no right to feel, and never consider that I might still suffer from that time?  From the knowledge of the power that I held?

I don't think about it much, really.  I don't consider it often.  I prefer not to, to be honest – what's the point?  I had good reasons for considering it when I did, and I had good reasons for deciding not to go down that road.  I'm not sorry we chose to continue with the triplet pregnancy, but neither am I sorry that we considered all of our medical options.  I am sorry, however, that someone feels the need to consider her ridiculous emotions over mine. 

Sorry for leaving you all hanging – that was a bit dramatic of me, wasn’t it? I started to feel better late in the day on Thanksgiving and was fully functional by Friday. Still, I think that’s a ridiculously long time after an HSG. Anyway, I’m all good now, so I can’t complain.

Beyond that, there’s nothing to do but wait, so wait I will.

Oh, on the insurance front, we realized there’s no reason to stop having my husband’s insurance, even though I’ll also have my own insurance. It doesn’t cost us anything to include me on his insurance – once you have more than one dependant, it’s the same no matter how many dependants you have, so whatever it is, it is. So we’ll keep his insurance as secondary insurance. This means if we decided to stick with The Hatchery, which is not covered under the new insurance, my husband’s insurance would cover it. Nice little loophole there, huh? Pain in the tush, but useful. It gives us options. I’ve never dealt with having a primary and secondary insurance before, so I have to figure out how that works logistically, but once I figure that out, I’m sure it will be a breeze. Right. Because dealing with insurance is ALWAYS a breeze, right?

Meanwhile, I received my medical record from my last go-round with fertility treatments. That made for some fun and light reading one night. Oh baby. Or babies, as the case may be. There were some inaccuracies in my medical history, which annoyed me. I hate inaccuracies, but at least these were unlikely to affect my pregnancy outcome or my treatment. But there were also inaccuracies in some of the nurse’s progress notes (not in any of the notes from my primary nurse). For example, in my discharge notes from a nurse at my “graduation” from my first pregnancy, the nurse noted that she counseled me on prometrium and baby aspirin use. I was never on baby aspirin. Was I supposed to be? I’m fairly certain I was not supposed to be because I asked about this in a subsequent pregnancy and I was told not to take it. But if a new doctor read this progress note, he might erroneously think I should be treated with baby aspirin. Particularly since I miscarried that pregnancy in the 13th week.

And then the shocker. In my 6th IUI cycle, I found the ultrasound report from Feb. 12th, 2007. Trigger day. That day they measured 9 follicles. I clearly remember those 9 follicles. One of them was 16.4 mm. Not big enough to trigger – optimal is 18mm. But the others were close behind… 15.8, 14.2, 14.0, 14.0, 13.8, etc. The doctor covering monitoring that morning said they’d have to look at my bloodwork and make some decisions… cancel or trigger early, which would likely mean writing off the cycle all together because that lead follicle was too small to be worth anything yet. But waiting until it was an 18mm cycle was going to risk letting the others catch up and would probably guarantee a cancelled cycle or quintuplets. Later that day, I got the call – no more Follistim; trigger that night, come in on Valentine’s Day for IUI. My doctor had no hope that cycle would yield a baby, but we were ready with a plan. We had the IVF protocol lined up and ready to go, and all the drugs were ordered already.

Little did they know how many of those non-viable follicles would turn into viable heartbeats.

What they never told me, and what I discovered in that ultrasound report, was that in addition to those 9 follicles they measured that day… there were 30, count ’em, THIRTY other follicles that they DIDN’T measure hanging out in my ovaries that day.

Thirty.

If I’d known that, I never would have let them trigger me that day. Never. At least, not without some explanation for why they didn’t think I was going to hyperstim. Looking at that report now, brings back the rush of anger, fear, panic, sheer terror that I had back then when I was first hearing that I had a viable HOM pregnancy. I feel like I re-lived those weeks of panic all over again in the space of just a few minutes staring at that page. I can’t get it out of my mind. I love my babies more than words can describe. If I didn’t, I wouldn’t even consider trying again. I have so much love for them, I can’t imagine not wanting to bring more into this world.

But I feel – I feel betrayed in a way. I feel like the very doctors who swore up and down to me that “oh we NEVER have HOMs!” and “It’ll never happen to you!” just should have known better that day. They just should not have rolled the dice that day. They knew I wasn’t going to stop after that cycle. They knew it wasn’t like I was going to walk away. They knew they were going to get a lot more of my money with an IVF cycle the very next month if they canceled that cycle. So why were they compelled to take such a risk? I love my babies. I wouldn’t trade them for anything. But what it took to get them here? It was the hardest thing I’ve ever done, and I feel strongly that if I was meant to be their mother, I would be, no matter what. I just wish – I wish I felt more like I’d become their mother because of something out of the control of that clinic. Looking at that report? I feel like they had so much control that day, and could have – nay, should have – pulled the plug on that cycle.

And with that… I’ll be walking back into their offices in January and thanking them for my beautiful babies. And asking them for more. One at a time.

I know things keep changing on how to help the Petrucelli Family, but this is hopefully the Final Word (for now).  Now we have some hopefully-permanent mechanisms in place and this should make things far more efficient.  Below is the email that we've sent out.  Many of you have asked me if you can circulate this information to your own mom's groups or multiples groups.  Please do.  If you would like the non-redacted version to send out, please leave a comment and I'll send it to you.

———————————————————

Thank you to everyone for your overwhelming response, concern, and shows of support for the Petrucellis in this time of great need.  We have been astounded by the incredible response that we have received from the community in such a short period of time and genuinely appreciate all the offers of help, donations, financial support, and your prayers.
 
We know that it has been confusing that things have changed several times regarding logistics of donations – unfortunately, we had no way of anticipating how quickly and dramatically the community would respond.  We never imagined such a widespread response in such a short period of time.  We literally received offers of donations from all over the country in a matter of hours. 
 
Right now, the most important thing for the Petrucellis is that they be able to focus on the recovery of their boys, who are still in the hospital.  Obviously, our thoughts and prayers are all with them in this time of great need.
 
We now have established a system which we believe will remain a permanent system for both financial donations and for offers of physical goods.  Please refer to this email for all future donations and see the FAQ's below for any questions.
 
FINANCIAL DONATIONS AND VOLUNTEER EFFORTS:
For financial donations to the Petrucelli Family, the Petrucelli Relief Fund has been established, and donations may be made online via the following website:  http://petrucellirelieffund.com .  Volunteer Efforts are also being coordinated through this site by clicking on the Lotsa Helping Hands link on the site. 
 
DONATIONS OF GOODS:
All offers of donations of goods should be emailed to petrucellihelp@gmail.com with the subject "OFFER" and we will keep a running inventory of what has been offered.  When the family is ready, they will be able to determine what they most need and can use from this inventory.
 
FAQ's
 
What if I have already donated money through the Petrucelli Family Fund established by the Montgomery County Parents of Multiples?
No problem.  Your donation is very much appreciated and will still be given directly to the family to assist with their needs.  The Petrucelli Family Fund will still be used for funds for the Petrucelli family.  However, the primary source of relief funding from this point forward should be the Petrucelli Relief Fund, which can be accessed via http://petrucellirelieffund.com
 
What if I have already dropped off goods at Christie Leu's house?  Similarly, what if I have already mailed donations to Karen Cohen's house?
This is not a problem.  Your donations are definitely appreciated and will be accounted for.  We will track these donations and ensure that Doug Davidson has a list of these items for his inventory.  We will continue to store these items until we determine whether the Petrucelli's need these items.  If your items are not needed at that time, your items will either be returned to you if you wish, or, if you prefer, donated to another worthy organization. 
 
How do I know what the Petrucelli's need?  How will I know what to offer Doug Davenport?
For now, assume that the Petrucelli's will need most of their basic household items replaced in the long term, especially things for the children.    Once the family has had some time to regroup and the boys have had some time to recover, the family will be able to determine what their specific needs are and perhaps post a "wish list" of specific items they are looking for.
 
What size clothes do the boys wear?
Two of the boys wear size 4T clothes, and one boy wears 3T clothes.  They are quite tall for their age. 
 
What if I already mailed a gift card to Michelle Wizov or Karen Cohen?
This is not a problem.  Michelle and Karen are tracking all of the gift cards and will make sure that they are delivered to Ami Susan and Michael as soon as possible.  Your generous gifts are definitely appreciated.
 
I would still like to send a gift card.  Who should I send it to?
You can send gift cards to:
 
The Petrucelli Relief Fund
P.O. Box 7221
Arlington, VA 22207-0221
 
Please ensure that your name and address are included with the gift card, so that the Petrucellis have the opportunity to thank you when they are able.
 
If you have any questions about gift cards, you can contact me at chezperky@gmail.com
 
What if I have more questions about how I can help?  Who can I contact?
If you have additional questions about any of these details, please contact petrucellihelp@gmail.com or see http://www.petrucellirelieffund.com

Many people have asked me about how to help the family I posted about earlier. 

The Montgomery County Parents of Multiples has started a trust fund for the family.
If you wish to donate to the fund, please have checks sent payable to the "Petrucelli Family Fund" as follows:

Petrucelli Family Fund
Attn: Megan Wallace
Wallace Law, LLC
11300 Rockville Pike
Suite 405
Rockville, Maryland 20852
(Phone number is 301-468-0603)

 You can also contact me directly if you are looking for additional ways to help.  For now, the family has asked for a hold on physical donations while they focus on the boys' recovery and take some time to regroup.

In Happier News…

Ellie-bean seems to be trying to say her first word!  She now waves "bye-bye" (FINALLY) and while she's waving she says "aye-aye" in exactly the right intonation to sound like when I say "bye-bye".  She is definitely copying us saying "bye-bye."  She's using it in context, and consistently, so it is for SURE her first word!  Neat, huh?

Sad News

The triplet community is a close-knit community, both online and in real life.  There just aren't that many of us, so we tend to stick together.  So when tragedy hits a triplet family, we all feel it whether we know the family personally or not.

Today, tragedy struck a family I know well, and I am truly heartbroken for this family who has already been through so much.  My good friend, A, has 28 month old triplet boys.  She fought so hard to have those boys, suffered a tremendously difficult miscarriage, a difficult journey through infertility, and finally got pregnant with these beautiful triplets.  She was on complete bed rest for most of the pregnancy, and literally nearly died while delivering them.  Suffice it to say, she's had more than her share of suffering in this world.

Today, her nanny put her boys down for a nap as always, and went out to the back porch to get a breath of fresh air, only to discover that the porch was engulfed in flames.  She alerted the boys' father, who was home, and ran upstairs to get the boys out of their cribs.  Unfortunately, by that time, the fire had spread too far, and the nanny, the boys, and the father were trapped in the house.  Firefighters rushed to the scene and were able to get them out of the house, but had some difficulty getting the boys out of the cribs because of the crib tents. 

The father was treated for inhalation injuries and minor burns and sent to a local hospital.  The triplets were rushed to Children's Hospital for inhalation injuries.  Though most news stories reported that the boys were in critical condition and suffered serious burns (2nd and 3rd degree), my understanding, from more reliable sources) is that the boys did NOT suffer serious burns and are in serious, but NOT critical condition.  UPDATE:  The boys suffered severe inhalation injuries and have been intubated and sedated.  They are in critical condition, but did not suffer any burn injuries.  They are expected to spend at least a week to 10 days in the hospital.

The house is completely destroyed.  It took over 75 firefighters to put the fire out.  They still don't know what started the fire.

AS, the mother, was in Philadelphia today, but obviously has rushed back to be with her husband and children.  She is obviously so lucky that her husband and children should be okay, but this is an incredibly traumatic experience to have to go through, particularly so close to the holidays. 

It astounds me how quickly the triplet community rallied around the family to help them. Not just the triplet community, but the multiples community in general, actually.  I was first alerted to the situation by the President of the Parents of Multiples Club that I am on the board for.  Shortly thereafter, I got an email from my triplets group.  By then, AS had already been offered a place to stay, another triplet mom was at the hospital with the family, and we were working together to see what the family needed.

Mostly what the family needs right this instant is thoughts and prayers.  But soon, they will need clothes and toys and books for the children (not to mention themselves).  They have lost everything, really.  Everything.  I've already gotten a couple offers of things from other triplet moms from further out who are going to give me some things to give to AS, and I am sure there will be more offers.  I know that another difficult aspect of this is that this is coming so close to the holidays, and I have no idea what this will mean for their Christmas celebrations.   Hopefully, we'll be able to rally around to help them with that as well. 

I am heartbroken for them, but so proud of the community I belong to now.  We really do take care of each other.  My thoughts and prayers are with AS and her family tonight.

Youch

Seriously?

Ow.

And I feel like this shouldn’t still hurt.

On a Scale of 1 to 10…

Holy Crap, I’m still in so much pain from today’s HSG that I think I might throw up. It comes and goes in waves, but this is really not feeling great. I’m not enjoying this.

Update (6am, Wed.): The pain has subsided quite a bit, but I’m still really nauseated. It is possible the nausea was unrelated to the pain and HSG entirely.

Abby: My Little Music Snob

PICT0196-1 So we've all heard the debates about nature vs. nurture and we all have our own opinions about them.  Some people believe that everything is totally ingrained and nothing we do on the nurturing side can change nature's ingrained tendencies.  Some people believe that nothing is written in stone and nurturing is absolutely 100% responsible for the way people turn out in life.  Clearly, most of the time, the truth lies somewhere in the middle.  But I am learning that there are definitely some things that are honestly just programmed into our code from the very beginning. 

Take my Abby, for example.  She's my little music snob.  She hasn't had time to have had this ingrained through the nurturing process.  But she comes by it honestly.  I was  a flutist for 15 years and also played oboe for 8 years.  I majored in music in college until I had an injury in my junior year that kept me from finishing my last several performance credits for the degree (I do have a minor in music, but fat lot of good that does me).  I studied under some of the best musicians in the world and had some fantastic opportunities to tour with orchestras in the US and Europe.  I always expected music to be an integral part of my life and I'm shocked to discover that it's not nearly as much in the forefront of my daily life as I expected it to be. 

Back to Abby – that was all just background.

A couple weeks ago, as the babies were finishing up dinner, I put on Tchaikovsky's Fourth Symphony.  If you know Tchaikovsky at all, you know that he wrote a lot of ballet, and much of what he wrote that ISN'T ballet still lends itself to ballet.  Now, I am clearly no ballerina.  But my kids were in their high chairs looking amused, and Tchaikovsky was floating out of the CD player and there was this big, wide open space in the living room/dining room, so I started pirouetting around and doing really bad arabesques.  Sam and Ellie clapped and smiled, but Abby – oh Abby was cracking up.   I mean, seriously, she was totally CRACKING UP.  She could not stop giggling and laughing and reaching out toward me.  She was completely, totally CRACKING UP.  It's so funny, because she's normally so serious, so watching her crack up was so amusing to me.

I didn't think much of it, because I figured that she was just laughing at her crazy mama making a fool out of herself in the living room, right?    The next day, the babies were playing with toys on the living room floor, and I put the same CD back in and Abby immediately smiled and looked up at me.  I started pirouetting around again, and she started CRACKING UP!  The fun didn't last long, though, because I was getting ready to change their diapers and put them down for a nap.  Seth wandered upstairs and noticed the music on and said, "Oh no!  Did I miss pirouettes AGAIN?"  No way am I ever going to let anyone else ever see me doing pirouettes, not even my husband.  He'd probably fall over laughing.  So I scooped Abby up into my arms and started spinning around with her with the music still on.  Once again, she started cracking up, laughing hysterically.  When I stopped spinning she looked around at the world like it was a new and fascinating place. 

Still, I didn't think much of it, because what kid WOULDN'T love to be scooped up into mommy's arms and spun around for some fun?

Later in the week, my mom was over and I wanted to show her how Abby cracks up when you spin her around, so I scooped her up and spun her around.  She smiled.  And she let out one tiny chuckle.  But no cracking up.  I was completely perplexed.  I tried again.  Still, nothing.  Just a smile.  No cracking up.  How could this be?  How could my daughter be sitting there in my arms purposely making a liar out of me?

And then I realized how quiet it was in the house.  Could that be the problem?  Could my daughter be so discerning that she wanted the music on?  Nah.  Couldn't be.   But, just in case, I turned Tchaikovsky back on, and sure enough, Abby grinned immediately, and as soon as I started spinning her around, she CRACKED UP.

Interestingly, Abby does not respond nearly so strongly to Mozart, Brahms, Moussorgsky, Beethoven, Bach, Prokofiev or Rachmaninoff.  But Ellie totally digs Rachmaninoff – more than anything else.  Isn't it neat that they both have a favorite?  Ellie gets up and dances for Rachmaninoff.  Sam dances for all of it.  He's just a dancing fool.

I love it.