Archive for February, 2013

My team is 1/3 of the way toward meeting our March of Dimes March for Babies fundraising goal. We need your help to support this important organization. CLICK HERE TO DONATE OR SIGN UP TO WALK WITH US.

Many of you know about the great work and research that is supported by the March of Dimes. This year, the March of Dimes is celebrating its 75th Anniversary. Founded by Franklin Roosevelt in 1938 to find a cure for Polio, the March of Dimes succeeded in its original mission, and since then has focused on finding the cause of prematurity and elimating birth defects. The March of Dimes is working toward a world in which all babies are born healthy.

All four of our beautiful and miraculous children were born premature. We were lucky to have generally good outcomes, but much of the medical science that kept my babies healthy before and after birth came from research supported by the March of Dimes. We are indebted to the March of Dimes and feel strongly about giving back to this wonderful organization.

With that in mind, our family will be walking in the annual March for Babies event on April 25th. Please consider supporting our fundraising efforts for this important and valuable organization.

Please help by donating or signing up to walk today!

The mission of March of Dimes is to improve the health of babies by preventing birth defects, premature birth, and infant mortality.

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Update on ChezPerky

I’ve been pretty lousy about updating, but I should get back to it, so as usual, I’ll just dive right in.

My health hasn’t improved significantly, but it hasn’t gotten significantly worse, either.  I’ll take status quo.

Sam’s ASD diagnosis has solidified, but he’s doing really well and we’ve got a great support team.  He’s adorable and sweet, and we know he’ll do well in the long run.  We’ve been struggling a bit with his ADHD medications, which has actually not been a bad thing, because it gave his teachers an opportunity to see behaviors that we knew were there, but they didn’t.  It strengthened our argument at our IEP Planning meeting, so it ended up being good timing.  Lemonade out of lemons, or some such thing.  We are so lucky to have an amazing support structure in place for him and I couldn’t ask for a better kid, to be honest.  He’s sweet and kind, and full of love.  I wish we understood a little better what’s going on in his head, but who doesn’t wish that of their kids anyway?

Ellie is such a gem.  She’s excited to learn, wants to please everyone, and she’s generous and is extremely attached to Mommy and Daddy. She’s in the same Pre-K class with Abby, but had over a week in school without Abby when Abby was sick and THRIVED.  She was so excited to tell us all about everything that she did in school those days:  “Guess what I did in school WITHOUT ABBY Today!?” and “I had such a good time at school WITHOUT ABBY!” etc.  Uh, suffice it to say, we’ll be separating the girls’ classrooms next year!

Abby is also adorable.  She’s independent and unique, loves to make cards and pictures for people and is turning into quite the little artist (well, by a five year old’s standard…).  She just got diagnosed with “primary generalized epilepsy – absence type” because she’s been having pretty obvious absence seizures for over a year, but in the last few months, they’ve been occurring so frequently that they’re starting to interfere with her ability to make it through activities (at *least* 8-12 per day).  The neurologist was able to give  adfinitive diagnosis without an EEG (though we’ll still be doing an EEG) by provoking seizures in the office.  Apparently, you can provoke absence seizures by inducing hyperventilation (in a kid who’s already getting them).  Sure enough, she had three seizures right there in the office.  I didn’t love the doctor, but the PA was fantastic.  Another bit of our little adventure, right?  At least we’re never bored!

Tobie is simply precious.  And precocious.  She loves to dress up and pretend and have princess tea parties.  She likes do “Dance with my Daddy” whenever she can.  She’s snuggly and sweet and far too smart for her own good.  She’s also extremely opinionated.  She’s adorable and she knows it, which isn’t great.  She doesn’t like to settle for anything less than exactly what she wants, which is becoming quite a challenge.  Truthfully, she mostly gets what she wants- she’s pretty spoiled, I admit, but if you could see her and be around her, you’d know why!  She’s hard to resist.  Even my nanny who is VERY no nonsense (in a good, and loving, way) has a soft spot for Tobie.

Seth’s still working out of state and doing well with it, but we miss him.  His contract goes through June, and we don’t know what we’ll be doing after that, but I’m sure we’ll work it out.

Hopefully I’ll be better about updating from this point on so that I can update about real things instead of just catching up all the time.

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