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Archive for December, 2008

This has been a month full of hard news.  The loss of the second twin of a member of our multiples club.  The catastrophic fire in the triplet family's house.  And now…  something I can't even understand, and something I can hardly even write about, for I am just sick over it.

My friend Yael's 5 month old daughter died last night.  She died in an accident, without warning, while Yael was at work.  She was rushed to the hospital, but it was too late, and there was nothing that could be done to save her. 

How can any mother ever surive the pain of such a loss?  How can anyone ever explain the loss of a child?  How can we explain a God who rips away a child from her mother after only 154 days together?  How dare He?  How could He be so cruel? I have heard all the explanations.  I know that many believe that her neshama (soul) completed what she needed to complete her on earth and is now closer to Hashem (God).  That she was so special that she only needed to be here briefly to touch the lives that she touched before moving closer to Hashem.  I've heard it.  I know that so many feel comfort in these thoughts.   I know that I'm supposed to believe these things.  I know that I'm supposed to hold on to these things.  But all I can feel is horror at the idea that idea that there is any  right or justification in ripping a child from her mother. 

I held my babies close tonight.  They squirmed and tried to get away, because they didn't understand.  But I held them tight.  I squeezed the J-man a little longer when I said good night and he asked me why and I told him it was because I love him so much and he said, "but if you always hug me so long I won't be able to breathe!"  I suppose there is more wisdom in that statement than he will ever realize.  Still, it was hard to let go of any of my children tonight.

If Yael's baby could be ripped from her last night with no warning, with no justification, with no reason, with no fairness – well, I can't even finish my thought.  It's too horrible to even say it. 

I don't even know what to think or feel.  I'm angry.  I'm heartbroken.  I'm just… I don't even know. 

I think I'll be offline for a bit.  I've got a lot going on right now – the Petrucelli Relief.  My own work.  My own family.  My class.  Meetings.  Appointments.  Therapy for the kids (did I mention the triplets are getting speech therapy now?)   Now this.  I just don't have it in me to be blogging about too much right now.   Don't assume that radio silence means there's anything wrong – it just means I'm swamped.

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Oh Nuts!

The J-man has been begging me for candy rings for months.  Unfortunately, they aren't easy to come by where we live.  At least, it's not easy to come by kosher candy rings where we live.  And, you know, I'd do just about anything to get him to take his medicine these days, I'm betting a beautiful candy ring would make for a fine bribe for medicine-taking.  

And finally, FINALLY, my friend R pointed me in the direction of Oh Nuts!  If you're ever in Brooklyn, this is the place to stop.  But better yet, if you can't make it to Brooklyn, check out their website.  After all, I'm rarely in Brooklyn, and with four kids, the odds of me making it to Brooklyn anytime soon are rather slim.

So I was SO thrilled to find the Oh Nuts! website tonight.  They had candy rings, candy pacifies, kosher gummy dinosaurs even!  Oh, and let's not stop there!  They even had … are you ready?  Kosher gummy cokes!  By the pound!  I am in heaven.  I could not ask for better.  These were a special treat that I fell in love with as a child in Europe and I haven't been able to find them as an adult, and I'm just so thrilled to have access to them now! 

Ordering was a *snap* and I'm eagerly awaiting my order.  I can't WAIT for my order to arrive!

Gifts, candy & chocolate from Oh! Nuts

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New Kindred Spirit

Received the following email from one of the folks I'm working closely with these days:

Forgot to tell you – Tiny stress zit appeared on nose.  Have decided to blame on Q…  Should I post
on chez perky?

I love her.  Truly, I do.

I have to say, I'm not sleeping much these days.  I'm working too much.  There's programming for my multiples club.  There's parenting 101.  There's cleaning in the house (that's pretty much not getting done).  I've got a neighbor who just had a hip replaced and I'm doing her laundry for her once a week.  There's a friend whose triplets are in the hospital with the flu and pneumonia.  There's my friend who's triplets are in the ICU because of the fire and the huge relief effort and coordination associated with that.   There's the fact that I don't like loose ends so even when it isn't my "shift" I'm right there working on the things that I had hanging around the day before.  There's my actual job – you know, the one I get paid for?  The software release coming out in a couple weeks.  The new policy that's getting released at the same time that I'm writing.  The meetings.  The training modules to develop.  The data reviews.  There's the meal preparation and the daily grind.  There's the fact that I have a minor dental emergency that I have to take care of tomorrow.  My car needs servicing and heaven knows when THAT'S going to happen.  There's getting J to (and from) school and speech therapy.  There's the class we're taking.  There's my friend who found out her dog is dying.  There's the fact that my husband won't be home tonight.  There's life, you know?  Did I mention I've been sick?

But then?  There's finding the kindred sprits among us amidst all of the other crap going on in life.    It just makes it all okay.

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Her words cut through me, more painful than a knife cutting through my flesh.  Her selfishness about her own feelings and her inability to realize how her words would affect me, so apparent. 

"You know," she said, with no prompting from me, "when you guys first told me about the triplets and you were telling me that doctors were encouraging you to reduce the pregnancy… " 

Clearly this was going nowhere good.

"I think about that often.  And I just."  She starts getting a little choked up here.  "I am just so glad that you didn't.  Because I wonder all the time which one of those precious babies wouldn't be here."

I feel my face burning with anger, thankful for the very small favor that this conversation is taking place over the phone, rather than in person.  How dare she?  How frickin' DARE she make this about HER pain?  Is there anyone out there who does not believe that I did not agonize over ever even considering a reduction after seeing three perfectly viable heartbeats?  Does she think it was fun having doctors tell me my two choices were to try to carry all three and probably lose all three and possibly compromise my own health or reduce to possibly increase the chances for everyone, but still risk losing them all? 

I know which baby wouldn't have been here if I'd reduced.  Does she think I don't know that?  Does she think it isn't awful enough in and of itself that I know that?  Does she think that's not awful enough without being reminded of it?  Did she really *have* to bring it up without any good reason?

And really, how dare she fail to consider how her words might affect my state of mind.  How dare she only consider her own pain, pain which frankly she has no right to feel, and never consider that I might still suffer from that time?  From the knowledge of the power that I held?

I don't think about it much, really.  I don't consider it often.  I prefer not to, to be honest – what's the point?  I had good reasons for considering it when I did, and I had good reasons for deciding not to go down that road.  I'm not sorry we chose to continue with the triplet pregnancy, but neither am I sorry that we considered all of our medical options.  I am sorry, however, that someone feels the need to consider her ridiculous emotions over mine. 

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Sorry for leaving you all hanging – that was a bit dramatic of me, wasn’t it? I started to feel better late in the day on Thanksgiving and was fully functional by Friday. Still, I think that’s a ridiculously long time after an HSG. Anyway, I’m all good now, so I can’t complain.

Beyond that, there’s nothing to do but wait, so wait I will.

Oh, on the insurance front, we realized there’s no reason to stop having my husband’s insurance, even though I’ll also have my own insurance. It doesn’t cost us anything to include me on his insurance – once you have more than one dependant, it’s the same no matter how many dependants you have, so whatever it is, it is. So we’ll keep his insurance as secondary insurance. This means if we decided to stick with The Hatchery, which is not covered under the new insurance, my husband’s insurance would cover it. Nice little loophole there, huh? Pain in the tush, but useful. It gives us options. I’ve never dealt with having a primary and secondary insurance before, so I have to figure out how that works logistically, but once I figure that out, I’m sure it will be a breeze. Right. Because dealing with insurance is ALWAYS a breeze, right?

Meanwhile, I received my medical record from my last go-round with fertility treatments. That made for some fun and light reading one night. Oh baby. Or babies, as the case may be. There were some inaccuracies in my medical history, which annoyed me. I hate inaccuracies, but at least these were unlikely to affect my pregnancy outcome or my treatment. But there were also inaccuracies in some of the nurse’s progress notes (not in any of the notes from my primary nurse). For example, in my discharge notes from a nurse at my “graduation” from my first pregnancy, the nurse noted that she counseled me on prometrium and baby aspirin use. I was never on baby aspirin. Was I supposed to be? I’m fairly certain I was not supposed to be because I asked about this in a subsequent pregnancy and I was told not to take it. But if a new doctor read this progress note, he might erroneously think I should be treated with baby aspirin. Particularly since I miscarried that pregnancy in the 13th week.

And then the shocker. In my 6th IUI cycle, I found the ultrasound report from Feb. 12th, 2007. Trigger day. That day they measured 9 follicles. I clearly remember those 9 follicles. One of them was 16.4 mm. Not big enough to trigger – optimal is 18mm. But the others were close behind… 15.8, 14.2, 14.0, 14.0, 13.8, etc. The doctor covering monitoring that morning said they’d have to look at my bloodwork and make some decisions… cancel or trigger early, which would likely mean writing off the cycle all together because that lead follicle was too small to be worth anything yet. But waiting until it was an 18mm cycle was going to risk letting the others catch up and would probably guarantee a cancelled cycle or quintuplets. Later that day, I got the call – no more Follistim; trigger that night, come in on Valentine’s Day for IUI. My doctor had no hope that cycle would yield a baby, but we were ready with a plan. We had the IVF protocol lined up and ready to go, and all the drugs were ordered already.

Little did they know how many of those non-viable follicles would turn into viable heartbeats.

What they never told me, and what I discovered in that ultrasound report, was that in addition to those 9 follicles they measured that day… there were 30, count ’em, THIRTY other follicles that they DIDN’T measure hanging out in my ovaries that day.

Thirty.

If I’d known that, I never would have let them trigger me that day. Never. At least, not without some explanation for why they didn’t think I was going to hyperstim. Looking at that report now, brings back the rush of anger, fear, panic, sheer terror that I had back then when I was first hearing that I had a viable HOM pregnancy. I feel like I re-lived those weeks of panic all over again in the space of just a few minutes staring at that page. I can’t get it out of my mind. I love my babies more than words can describe. If I didn’t, I wouldn’t even consider trying again. I have so much love for them, I can’t imagine not wanting to bring more into this world.

But I feel – I feel betrayed in a way. I feel like the very doctors who swore up and down to me that “oh we NEVER have HOMs!” and “It’ll never happen to you!” just should have known better that day. They just should not have rolled the dice that day. They knew I wasn’t going to stop after that cycle. They knew it wasn’t like I was going to walk away. They knew they were going to get a lot more of my money with an IVF cycle the very next month if they canceled that cycle. So why were they compelled to take such a risk? I love my babies. I wouldn’t trade them for anything. But what it took to get them here? It was the hardest thing I’ve ever done, and I feel strongly that if I was meant to be their mother, I would be, no matter what. I just wish – I wish I felt more like I’d become their mother because of something out of the control of that clinic. Looking at that report? I feel like they had so much control that day, and could have – nay, should have – pulled the plug on that cycle.

And with that… I’ll be walking back into their offices in January and thanking them for my beautiful babies. And asking them for more. One at a time.

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I know things keep changing on how to help the Petrucelli Family, but this is hopefully the Final Word (for now).  Now we have some hopefully-permanent mechanisms in place and this should make things far more efficient.  Below is the email that we've sent out.  Many of you have asked me if you can circulate this information to your own mom's groups or multiples groups.  Please do.  If you would like the non-redacted version to send out, please leave a comment and I'll send it to you.

———————————————————

Thank you to everyone for your overwhelming response, concern, and shows of support for the Petrucellis in this time of great need.  We have been astounded by the incredible response that we have received from the community in such a short period of time and genuinely appreciate all the offers of help, donations, financial support, and your prayers.
 
We know that it has been confusing that things have changed several times regarding logistics of donations – unfortunately, we had no way of anticipating how quickly and dramatically the community would respond.  We never imagined such a widespread response in such a short period of time.  We literally received offers of donations from all over the country in a matter of hours. 
 
Right now, the most important thing for the Petrucellis is that they be able to focus on the recovery of their boys, who are still in the hospital.  Obviously, our thoughts and prayers are all with them in this time of great need.
 
We now have established a system which we believe will remain a permanent system for both financial donations and for offers of physical goods.  Please refer to this email for all future donations and see the FAQ's below for any questions.
 
FINANCIAL DONATIONS AND VOLUNTEER EFFORTS:
For financial donations to the Petrucelli Family, the Petrucelli Relief Fund has been established, and donations may be made online via the following website:  http://petrucellirelieffund.com .  Volunteer Efforts are also being coordinated through this site by clicking on the Lotsa Helping Hands link on the site. 
 
DONATIONS OF GOODS:
All offers of donations of goods should be emailed to petrucellihelp@gmail.com with the subject "OFFER" and we will keep a running inventory of what has been offered.  When the family is ready, they will be able to determine what they most need and can use from this inventory.
 
FAQ's
 
What if I have already donated money through the Petrucelli Family Fund established by the Montgomery County Parents of Multiples?
No problem.  Your donation is very much appreciated and will still be given directly to the family to assist with their needs.  The Petrucelli Family Fund will still be used for funds for the Petrucelli family.  However, the primary source of relief funding from this point forward should be the Petrucelli Relief Fund, which can be accessed via http://petrucellirelieffund.com
 
What if I have already dropped off goods at Christie Leu's house?  Similarly, what if I have already mailed donations to Karen Cohen's house?
This is not a problem.  Your donations are definitely appreciated and will be accounted for.  We will track these donations and ensure that Doug Davidson has a list of these items for his inventory.  We will continue to store these items until we determine whether the Petrucelli's need these items.  If your items are not needed at that time, your items will either be returned to you if you wish, or, if you prefer, donated to another worthy organization. 
 
How do I know what the Petrucelli's need?  How will I know what to offer Doug Davenport?
For now, assume that the Petrucelli's will need most of their basic household items replaced in the long term, especially things for the children.    Once the family has had some time to regroup and the boys have had some time to recover, the family will be able to determine what their specific needs are and perhaps post a "wish list" of specific items they are looking for.
 
What size clothes do the boys wear?
Two of the boys wear size 4T clothes, and one boy wears 3T clothes.  They are quite tall for their age. 
 
What if I already mailed a gift card to Michelle Wizov or Karen Cohen?
This is not a problem.  Michelle and Karen are tracking all of the gift cards and will make sure that they are delivered to Ami Susan and Michael as soon as possible.  Your generous gifts are definitely appreciated.
 
I would still like to send a gift card.  Who should I send it to?
You can send gift cards to:
 
The Petrucelli Relief Fund
P.O. Box 7221
Arlington, VA 22207-0221
 
Please ensure that your name and address are included with the gift card, so that the Petrucellis have the opportunity to thank you when they are able.
 
If you have any questions about gift cards, you can contact me at chezperky@gmail.com
 
What if I have more questions about how I can help?  Who can I contact?
If you have additional questions about any of these details, please contact petrucellihelp@gmail.com or see http://www.petrucellirelieffund.com

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Many people have asked me about how to help the family I posted about earlier. 

The Montgomery County Parents of Multiples has started a trust fund for the family.
If you wish to donate to the fund, please have checks sent payable to the "Petrucelli Family Fund" as follows:

Petrucelli Family Fund
Attn: Megan Wallace
Wallace Law, LLC
11300 Rockville Pike
Suite 405
Rockville, Maryland 20852
(Phone number is 301-468-0603)

 You can also contact me directly if you are looking for additional ways to help.  For now, the family has asked for a hold on physical donations while they focus on the boys' recovery and take some time to regroup.

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In Happier News…

Ellie-bean seems to be trying to say her first word!  She now waves "bye-bye" (FINALLY) and while she's waving she says "aye-aye" in exactly the right intonation to sound like when I say "bye-bye".  She is definitely copying us saying "bye-bye."  She's using it in context, and consistently, so it is for SURE her first word!  Neat, huh?

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Sad News

The triplet community is a close-knit community, both online and in real life.  There just aren't that many of us, so we tend to stick together.  So when tragedy hits a triplet family, we all feel it whether we know the family personally or not.

Today, tragedy struck a family I know well, and I am truly heartbroken for this family who has already been through so much.  My good friend, A, has 28 month old triplet boys.  She fought so hard to have those boys, suffered a tremendously difficult miscarriage, a difficult journey through infertility, and finally got pregnant with these beautiful triplets.  She was on complete bed rest for most of the pregnancy, and literally nearly died while delivering them.  Suffice it to say, she's had more than her share of suffering in this world.

Today, her nanny put her boys down for a nap as always, and went out to the back porch to get a breath of fresh air, only to discover that the porch was engulfed in flames.  She alerted the boys' father, who was home, and ran upstairs to get the boys out of their cribs.  Unfortunately, by that time, the fire had spread too far, and the nanny, the boys, and the father were trapped in the house.  Firefighters rushed to the scene and were able to get them out of the house, but had some difficulty getting the boys out of the cribs because of the crib tents. 

The father was treated for inhalation injuries and minor burns and sent to a local hospital.  The triplets were rushed to Children's Hospital for inhalation injuries.  Though most news stories reported that the boys were in critical condition and suffered serious burns (2nd and 3rd degree), my understanding, from more reliable sources) is that the boys did NOT suffer serious burns and are in serious, but NOT critical condition.  UPDATE:  The boys suffered severe inhalation injuries and have been intubated and sedated.  They are in critical condition, but did not suffer any burn injuries.  They are expected to spend at least a week to 10 days in the hospital.

The house is completely destroyed.  It took over 75 firefighters to put the fire out.  They still don't know what started the fire.

AS, the mother, was in Philadelphia today, but obviously has rushed back to be with her husband and children.  She is obviously so lucky that her husband and children should be okay, but this is an incredibly traumatic experience to have to go through, particularly so close to the holidays. 

It astounds me how quickly the triplet community rallied around the family to help them. Not just the triplet community, but the multiples community in general, actually.  I was first alerted to the situation by the President of the Parents of Multiples Club that I am on the board for.  Shortly thereafter, I got an email from my triplets group.  By then, AS had already been offered a place to stay, another triplet mom was at the hospital with the family, and we were working together to see what the family needed.

Mostly what the family needs right this instant is thoughts and prayers.  But soon, they will need clothes and toys and books for the children (not to mention themselves).  They have lost everything, really.  Everything.  I've already gotten a couple offers of things from other triplet moms from further out who are going to give me some things to give to AS, and I am sure there will be more offers.  I know that another difficult aspect of this is that this is coming so close to the holidays, and I have no idea what this will mean for their Christmas celebrations.   Hopefully, we'll be able to rally around to help them with that as well. 

I am heartbroken for them, but so proud of the community I belong to now.  We really do take care of each other.  My thoughts and prayers are with AS and her family tonight.

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